I heard a few people talking about spoons on Friday morning at Stanford’s Medicine X conference . They were wondering why artist-in-residence Rachel Stork Stoltz, had asked us all to bring a spoon to the conference? After listening in a bit, I leaned over and tried to answer their questions. The spoon theory was created by Christine Miserandino and is a powerful way of explaining to a healthy person what it feels like to live with a chronic illness. You start the day with a finite amount of energy and as you move through the day you use quanta of energy (spoons) with even the smallest tasks of daily living. You count your spoons and may find you do not have enough spoons (energy) left to do what you want or need to that day because of the demands of your illness.
At its best moments Med X was a masterpiece of collaboration. It was a bringing together of patients, physicians, thought leaders and innovators to work together to discuss the future of medicine. Our recursive efforts mirrored and repeated each others’ in a way that built a powerful basis of understanding to move forward with.
Pamela Ressler opened her panel discussion on communicating the experience of illness in the digital age with a stunning quote from Susan Sontag:
Everyone who is born holds dual citizenship, in the kingdom of the well and in the kingdom of the sick. Although we all prefer to use the good passport, sooner or later each of us is obliged, at least for a spell, to identify ourselves as citizens of that other place.
Using an understanding of this commonality allowed us to enter into a dynamic dialog. I left the Med X space with more questions than answers. The questions are in themselves powerful motivators.
How will I recognize the daily efforts of patients in the days of their lives not in my office?
How will I be as caring as an old-school physician and as vital as a fully connected 2.0 MD.
How will I allow a space of communication about patient’s emotional challenges (as well as those physical)?
How will I shape my efforts to motivate health change through social media?
We did bring spoons to Med X and used them to create a sparkly, swirling tower of energy. We were each asked to think of what saps our energy and what refills our spoon count. I paused between lectures on Saturday and stood in the sunny afternoon decorating my spoon with wire and beads and copper. I tried to think as I worked not only of my own energy but of the more carefully counted energy of patients with chronic illness and hoped that they too felt a renewed spoon count from the connections forged at Med X.
After this, the first day of Stanford’s Medicine X conference, my mind is blown and my heart is full.
This word cloud of tweets today from @tmlfox Symplur.com analytics sums it all up well. “Patients” are at the center and are surrounded by “empathy”, “team”, “livestream” and “care. We see “relationships”, “mind” and “stories.” All are the spirit of MedX. All represent why I attend this amazing conference. There is the pure fun of the technology: tweeting, scanning our neighbor’s barcodes and using an app to request blanket deliveries. There are the people – each more inspiring than the next. The food is great and, have you met @therealzoechu?
At the end of the day though, none of that is really to the point. Instead, what matters is that I am left here pausing, quietly asking myself how I can be as caring a doctor as medical historian Barron Lerner’s physician father. He was a doctor of another generation. A generation of men faulted now for practicing paternalistic protection of their patients but praised for giving all to their work. They took call 24/7, they took every opportunity to reach out when needed, they went the extra mile.
In this era of technological involvement and focus, in this time of schedules and hurry, how do I go that extra mile? How do I pause and turn towards the person in front of me take the opportunity to reach out and care?